CONWAY — The New England Hemophilia Association and Sherman Farm are proud to announce the grand opening of a cornfield maze dedicated to the bleeding disorders community.
On Saturday, Sept. 21, at 10:30 a.m., NEHA will host a grand opening and ribbon cutting ceremony for The Maize at Sherman Farm. The ribbon will be cut by a family from Manchester living with a bleeding disorder.
Sherman Farm is the only farm in New Hampshire to create a corn maze to generate awareness and support for a chronic condition.
For over a year, NEHA and Sherman Farm worked together on a campaign to raise awareness about bleeding disorders.
In addition to raising awareness, Sherman Farm also is committed to supporting the bleeding disorder community by donating a portion of the corn maze proceeds to NEHA’s Emergency Assistance Fund. NEHA’s Emergency Assistance Fund is designed to help New England families that find themselves in financial crisis due to the costs associated with their bleeding disorder.
Treatments for bleeding disorders, such as hemophilia, are very expensive. The average cost of treatment for a person with hemophilia is in the neighborhood of $350,000 per year. If a person gets a complication called inhibitors, it can cost more than a million dollars annually.
NEHA’s Emergency Assistance Fund may be used to cover expenses like utility bills, transportation to and from medical appointments, rent, and food. Over the past five years, NEHA’s Emergency Assistance Fund has provided over $40,000 to families experiencing financial hardships. Every dollar that is contributed from this corn maze will go directly to families with bleeding disorders in need.
The New England Hemophilia Association is dedicated to improving the quality of life for persons with bleeding disorders and their families through education, support and advocacy. NEHA has assisted and advocated for all persons with inherited bleeding disorders in Connecticut, Massachusetts, Maine, New Hampshire, Rhode Island and Vermont since 1957.
Bleeding disorders are a group of conditions in which a person’s blood does not clot properly. Improper clotting can cause heavy and/or prolonged bleeding after an injury, surgery, or during menstruation. Bleeding disorders are usually genetic and are not contagious. Bleeding disorders can be very serious and often require treatment and lifestyle modification.
Although there are many different types of bleeding disorders some of the most common are: hemophilia A (factor VIII deficiency), hemophilia B (factor IX deficiency), hemophilia C (factor XI deficiency), and von Willebrand disease (vWD). There is no cure for hemophilia or vWD.
In New Hampshire, an estimated 100 people live with hemophilia and about over 10,000 living with other types of bleeding disorders.
Located along the winding Saco River valley in East Conway, Sherman Farm has been family-owned and run for more than half a century. Today three generations of the family are actively involved, and the fourth generation is already starting to learn about what it takes to run a family farm. The Maize at Sherman Farm has been a longstanding tradition for families in New England.
For more, go to newenglandhemophilia.org.