Beyond the diagnosis: Navigating life with pediatric low-grade glioma

(BPT) - On any given day, Regina Karchner, MSW, LICSW, Social Worker at the Children's Brain Tumor Foundation, meets with families at very different points in their journey. Some have just heard the words "brain tumor" for the first time. Others have been living with a diagnosis of pediatric low-grade glioma, or pLGG, for years. What connects them is not just the medical condition, but the way it reshapes daily life in ways few people on the outside fully see.

"While the shock of a brain tumor diagnosis is often acknowledged, the practical and emotional support families need in those early days doesn't always follow," says Regina. "Many families are left searching for someone who can slow down, answer questions and help them process what this diagnosis means for daily life."

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